1275 Mamaroneck Avenue
White Plains, NY 10605
Telephone: (914) 428-7100
Home Page: www.modimes.org
Jennifer Howe, Ph.D., President

Purpose: Promotes educationand research on genetic and environmental causes of birth defects.

Publications: Information pamphlets.

P.O. Box 670847
Dallas, TX 75367-0847
Telephone: (214) 696-2188 or 1-800-945-2188
Susan G. Mize, Project Director

Purpose: Provides a system forsharing reported data on inborn errors of metabolism that may be usefulto professionals caring for patients, to research investigators, and topatients seeking access to treatment.
Disorders: The 10 groups ofdisorders in MIN's working database of inborn errors of metabolism arebiotin defects, galactosemias, glycogen storage diseases, hereditary tyrosinedisorders, homocystinurias, hyperphenyl-alaninemias, maple syrup urinediseases, mucopoly saccharidoses, organic acidurias, and urea cycle disorders.

505 Northern Boulevard, Suite200
Great Neck, NY 11021
Telephone: (516) 487-4992
Home Page: medhelp.org/www/nadf.htm
Joyce Mullen, Executive Director

Purpose: Provides a nationalself-help network for educational and emotional support for patients andtheir families.

Publications: NADF Newsletter(periodic); educational materials.

P.O. Box 8923
New Fairfield, CT 06812-8923
Telephone: (203) 746-6518
Home Page: www.pcnet.com./~orphan/
Abbey S. Meyers, Executive Director

Purpose: Acts as a clearinghousefor information about orphan diseases and as a network for families withsimilar disorders; encourages and promotes increased scientific researchon the cause, control, and ultimate cure of rare disorders, including inheritedmetabolic diseases; accumulates and disseminates information about orphandrugs and devices; and educates the general public and medical professionabout the existence, diagnosis, and treatment of rare disorders.

Publications: Orphan DiseaseUpdate (quarterly newsletter)

1150 17th Street, NW., Suite500
Washington, DC 20036-4603
Telephone: (202) 223-2226
Home Page: www.nof.org
Sandra C. Raymond, Executive Director

Purpose: Increases public awarenessand knowledge about osteoporosis; provides information to patients andtheir families; educates physicians and allied health professionals; andsupports basic biomedical, epidemiological, clinical, behavioral, and socialresearch and research training.

Publications: Osteoporosis Report(quarterly newsletter)
Osteoporosis: A Woman's Guide
Boning Up on Osteoporosis: A Guideto Prevention and Treatment 
information brochures and other educationalmaterials.