AAKSIS Registration

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Registering with AAKSIS helps us understand who is using the site and will help tailor what kind of information is presented to our users. Additionally, registration is useful to the organisation for funding and other purposes, but please review the AAKSIS Privacy Policy before continuing.

AAKSIS is aware that mere registration on the website, or membership in the organization or membership as a contributor to Friends of AAKSIS implies either a genetic anomaly or a close relationship to people or persons who have such an anomaly. The recording of names, addresses, phone numbers, e-mail addresses, karyotype information, and dates of birth or of diagnosis is done only for the purpose of providing the registrant with newsletters, brochures, announcements and other information related to Klinefelter Syndrome. Such information is held in a secure server file to which only the webmaster and the officers of AAKSIS have access. No directory will be published nor will the registration information ever be sold or provided to an outside party. We do review the basic information of site registrants to determine the characteristics of our audience by age and relationship to XXY individuals in order to modify site offerings, if necessary. AAKSIS also encourages site visitors to provide feedback about the materials offered on the site.

AAKSIS supports scientific research into the causes and medical and developmental complications of XXY. Should the organization be approached regarding providing subject names for a scientific survey or study, the proposal will first be approved by AAKSIS's scientific advisors. Once approval is given, AAKSIS will directly notify appropriate registrants (generally by age) of the possibility of serving as a subject. The subject may then decide either to participate or not and may correspond directly with the investigators who are conducting the study.

This site may contain links or references to other Web sites. Please be aware that we do not control other sites and that, in any case, this On-Line Privacy Policy does not apply to those Web sites. We encourage you to read the Privacy Policy of every Web site that you visit.

By using and registering on the site, you are confirming that you agree with this privacy policy. If you do not agree with the privacy policy please do not register your name with AAKSIS.

Fields with asterisks are mandatory.
Clicking the submit button returns you directly to the Visitor Center. Thank you for registering with AAKSIS.

*First Name:
*Last Name:
*Street Address:
*City:
*State or Province:
Other state or province:
*Country:
*Postal or ZIP code:
*E-mail address:
Telephone (home):
Please check this box if you are XXY:
Variant? Please enter exact karyotype, if known:
Please enter the XXY or variant date of birth. Otherwise, please leave blank.(mm/dd/yy: 6/18/63)
Prenatal?:
Date of Diagnosis?(mm/dd/yy: 6/18/63)
Relationship to the the affected individual?

About AAKSIS Contact Education Home Membership Support Visitor Center